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Leading ALS advocacy group roiled by infighting over money and priorities. ... Depending upon the outcome, some fear that efforts to provide patient services and, in some cases, ...
Amylyx can proceed with ALS submission to FDA afterall, marking a win for patients' advocacy efforts
RELATED: ALS Ice Bucket Challenge advocacy group calls for speedy FDA approval of Amylyx now-pending drug The advocacy group isn't afraid to step up the pressure on the FDA if AMX0035 appears to ...
NPR's Juana Summers tracks the advocacy efforts of husband and wife Brian Wallach and Sandra Abrevaya as they try and change the landscape for ALS patients. A few weeks ago, on a bright spring day ...
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Lowcountry 2024 Walk to Defeat ALS aims to fund research and careThe event aims to support those living with ALS and to fund research, advocacy, and care services. ALS, often referred to as Lou Gehrig’s disease, is a progressive neurodegenerative condition ...
The ALS Jim 'Catfish' Hunter Chapter is the taking the Ice Bucket Challenge across the state in efforts to continue the education and raise research money to fight ALS.
Tributes to Pete Frates are continuing to pour in following his death Monday after an eight-year battle with ALS, showing how the 34-year-old inspiration behind the “Ice Bucket Challenge” was ...
The Walk to End ALS starts at 10 a.m. Oct. 12 at Cosmo-Bethel Park and is focused on raising money for researching the degenerative disease. ... nationwide advocacy efforts, ...
A local ALS patient and advocate made his way into an important film that is going to be shown this week at SXSW. It chronicles the development of a new and powerful ALS advocacy nonprofit called ...
The Walk to End ALS starts at 10 a.m. Oct. 12 at Cosmo-Bethel Park and is focused on raising money for researching the degenerative disease.
In this hour of Live at 9: A local couple shares their ALS journey, plus insights from the ALS Association. Midsouth students talk about their award-winning documentaries, and election officials ...
The Walk to Defeat ALS is the ALS Association’s signature event, with funds raised directly supporting innovative research, care services, and advocacy efforts.
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