Organised by the Rotary Club of Inverness Loch Ness, this year’s event saw participants enjoy a scenic route through the Black Isle, Ardross, the Kyle of Sutherland and Easter Ross, before returning ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

Musician Eddie Vedder attends the 'Matter Of Time' premiere during the 2025 Tribeca Festival, at Spring Studios, New York, NY, June 12, 2025. The documentary centers around Eddie Vedder's fundraising ...

Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

A Dublin trike enthusiast is one of the key organisers behind a major bike and trike run raising funds for Debra, the national charity supporting those living with a rare skin disease.

A Dublin trike lover is spearheading a massive bike and trike run to rally funds for Debra, the charity aiding those affected ...

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Sophia is raising money for a national charity that supports people living with an incurable genetic skin condition, often ...

I was 16 years old when I finally blurted out the secret I’d kept for eight years while in a hospital appointment with my mum ...

Ashley Bergen says the healthcare system "helps in some ways" but there have been unexpected barriers to accessing care.