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Bob and Irene Glover lost their son, Stuart, to Duchenne muscular dystrophy when he was just 16 years old. Stuart was their second child and developed slower than other kids. "I eventually persuaded one of the younger GPs to refer us to a specialist, because I was certain—absolutely certain—that something wasn’t right." As Stuart got older, things became more difficult. After a back operation Stuart said to Irene: "It’ll give me more time, Mum." After the diagnosis, the family became involved wi

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