Today is Rare Disease Day! Maddy has two conditions that are rare, Cystic Fibrosis and ABPA. She came into the world and went straight to the nicu for 4 months fighting! She had 2 surgeries one at a few days old and another at 2 months. She’s been such a fighter and amazes us everyday! What she has to endure on a daily basis is just not fair but she continues to keep going and going and always living her best life whenever possible. She’s a true inspiration! Maddy’s condition is terminal and it’
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